Childhood Cancer STAR Reauthorization Act
Jan 5, 2023
Statute: 136 Stat. 6262
Became law: Jan 5, 2023
Jan 5, 2023
Statute: 136 Stat. 6262
Became law: Jan 5, 2023
Summary
Renews and improves federal programs for childhood cancer research, sample collection, and long-term care for young cancer survivors.
What problem does this solve?
Important programs for childhood cancer research and survivor care were going to end. This law provides new funding and makes updates to ensure this work continues and gets better.
What does this law do?
Extends funding for cancer sample collection
Authorizes funding from 2024 through 2028 for national biorepositories, which collect and store tissue samples from children with cancer for research.
Reference
Text:
Section:
Header:
Report on researcher access to children's cancer biorepository samples
Requires a review to improve researcher access
Directs the National Institutes of Health (NIH) to review procedures for accessing stored cancer samples within two years to find ways to reduce paperwork for researchers.
Expands survivor care research
Changes the focus from small 'pilot programs' to broader 'research' to find the best ways to care for childhood and adolescent cancer survivors.
Supports mental and emotional care providers
Requires recommendations for growing the number of health care workers who give mental and emotional support to young cancer patients and survivors.
Improves sharing of medical records
Promotes the design of tools to securely and electronically transfer treatment information and care summaries between different health care providers.
Who does this affect?
- Children and adolescents with cancer
- Cancer researchers
- Families of young cancer patients
What is the real world impact?
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Ensures continuity for vital research
Provides continued funding and authority for successful federal programs focused on finding cures for childhood cancer and improving the quality of life for survivors. This prevents a halt in progress due to expiring laws.
When does this start?
This law takes effect immediately, with specific actions and funding scheduled over the next several years.
Reference
Text:
Section:
Header:
Report on researcher access to children's cancer biorepository samples
Report on researcher access
The Director of the NIH must review procedures and report findings to Congress no later than 2 years after the law was passed.
Biorepository funding
Authorizes funding for the children's cancer biorepositories for the years 2024 through 2028.